Wednesday, 23 October 2013

ITP is...

Something I had never heard of until 3rd September. It transpires  that it is a reasonably rare blood disorder where your immune system attacks the bits of your blood that make it clot.  These are called platelets and they should be at round 150 in a healthy person.  When my blood was tested on 2nd September my platelet count was 4.  Low eh!

This kick started a hospital chain reaction: 2 phone calls from the on call specialist, an admission to A&E, a 7 hour wait to see a doctor, admitted to the Clinical Decision Unit for three hours sleep before a day of observations and blood tests.

When I did see the specialist on the 3rd, he could at least rule out, leukaemia!  I didn't even know it could be leukaemia! Phew!  However I was also told not to cycle or play badminton or do anything to strenuous in case i had an internal bleed or of course an external one!

Since that time I have had many blood tests and have got very used to the 'sharp scratch' that I am always readied with. I have got used to some medical jargon and also being treated really well by excellent health care professionals.  I have had two different drugs pumped into me via infusions, the latest of which we are till waiting to see if it will have the desired effect.

I have told the story many times and I have even taken to using Face Book to update people as to the latest status reports. I even wonder whether Bruce Forsyth may start a new game where he can do higher and lower and just call it 'The Platelet Count'!

Today I sit here not knowing what has caused me to have ITP and I do not know when the count will be normal and I do not know if it will stay normal once it has to to that place.  I generally feel fine, but just get very tired very quickly. The steroids I have been on are  the cause of this as well as the increased appetite, the irritability, and the facial puffiness that are recognisable side effects (honest governor).  It's also been an emotionally tiring time.  Not knowing what will happen next and just riding the rollercoaster is an exhausting journey; not being able to do things that you really enjoy, in case you hurt yourself unnecessarily is frustrating; being irritable with the ones you love the most is upsetting;  and just choosing positivity in itself can be a battle.

In all this we choose, as a family, to cling to God, to thank him that this is not cancer or anything else more severe; we thank him that we can continue pretty much as normal in family life; we thank him for a great church who has stood in prayer support; we thank him for a great job which has shown flexibility with random hospital appointments and procedures; we thank him for family and friends who have been a great support; and we thank him that we walk this journey of faith with Him.

Tuesday, 22 October 2013

Encouraging feedback is always nice!!!

This is an entry posted on the RFC student page on Face Book.  It's from an oversees student who saw that there was a home here for her.  I'm so glad to be part of a church like this!

Hi Reading Family Church! Most of you wont know me but for those of you that do, I just want to take the time to thank you for all the warmth and hospitality that you have extended to me over the last year that I was in Reading finishing my final year of LLB Law! 

I am currently doing a Postgrad in Cardiff, am in the midst of searching for a church to settle into, but RFC was definitely homeee for me, the whole of last year! I am sooo thankful to have met and known alot of reaaaally great friends from there, and with whom i'm still in touch with until today!  (you know who you are :P) 

Thank you Student Team for organising so many student lunches and having different families/couples hosts us for Sunday lunches! If you are new, trust me! You wont regret joining those student events! Id say, its at those smaller gatherings that i got to know people on a more personal level and have the privilege of enjoying a good meal with  

Sorry for this long post, should have done it earlier, but finally got around to doing it!  God bless, folks!  xx

Let's be encouraged and keep welcoming and extending warmth to all who we come across, we just don't always know the impact it has!